Friday, March 22, 2019

Weekly Disability Reading List

Closeup picture of a monthly calendar, focused on a single week

Links to three disability-related articles shared last week on NCCI social media. You can always visit NCCI on Facebook and Twitter at the following links:

Facebook:  https://www.facebook.com/ncciplattsburgh/
Twitter:  https://twitter.com/NCCIPlatts

New content is added every day.

Even in Grief, I Still Have Pride
Robyn Powell, New York Times - March 21, 2019

A lot of people still find it hard to understand how the difficulties, hardships, and stigma of disability are mixed with pride and solidarity in actual disabled people. This article goes a long way towards explaining.

Why We Turned Down Dr. Phil
Squirmy & Grubbs - March 14, 2019

It’s very tempting to accept whenever public visibility is offered to disabled people. But it matters every single time how we are portrayed, and the messages our presence are meant to convey. Some “opportunities” aren’t worth it.

First Data On Wheelchair Damage By Airlines Released By DOT
John Morris, Wheelchair Travel - March 14, 2019

The numbers may or may not look staggering on paper, but each “mishandled” wheelchair represents massive inconvenience, physical risk, and huge expense. Hopefully, having records of airline performance will help them improve.

Friday, March 15, 2019

Act Today To Save CDPA!

Action Alert in bold white letters on a dark red background

The following Action Alert comes from the New York Association on Independent Living:

We all know by now that The Governor’s proposed budget makes drastic changes to the Consumer Directed Personal Assistance (CDPA) program that will put the whole program at risk! Thankfully, the legislature heard you, and they both rejected the Governor’s proposal in their one-house budget responses. This is huge, as it brings us closer to keeping the Governor’s incredibly harmful proposal out of the final budget!

The Budget Conference Health Subcommittee is now meeting. They will be making tough decisions over the next week or two about what they can afford to support. Anything can happen over the next week or two, so it is essential that the members of this committee hear from you!

Action:

Contact the members of the Senate and Assembly Health Subcommittee! Thank them for their support in their budget response, and urge them to stay strong throughout final budget negotiations in their support to save CDPA!

Assembly Health Subcommittee:

* Assembly Member Gottfried 518-455-4941 or email GottfriedR@nyassembly.gov
* Assembly Member Cahill 518-455-4436 or cahillk@nyassembly.gov
* Assembly Member Bronson 518-455-4527 or bronsonh@nyassembly.gov
* Assembly Member Davila 518-455-5537 or DavilaM@nyassembly.gov
* Assembly Member Fernandez 518-455-5844 or fernandezn@nyassembly.gov
* Assembly Member Barnwell 518-455-4755 or BarnwellB@nyassembly.gov
* Assembly Member Raia 518-455-5952 or raiaa@nyassembly.gov
* Assembly Member Byrne 518-455-5783 or byrnek@nyassembly.gov

Senate Health Subcommittee

* Senator Rivera 518-455-3395 or grivera@nysenate.gov
* Senator Salazar 518-455-2177 or salazar@nysenate.gov
* Senator Carlucci 518-455-2991 or carlucci@nysenate.gov
* Senator Montgomery 518-455-3451 or montgome@nysenate.gov
* Senator Thomas 518-455-3260 or thomas@nysenate.gov
* Senator Gallivan 518-455-3471 or gallivan@nysenate.gov
* Senator Jacobs 518-455-3240 or jacobs@nysenate.gov

You can also contact our North Country Legislators and ask them to support the Senate and Assembly provisions on Consumer Directed Personal Assistance, (CDPA)

* Assembly Member Billy Jones 518-562-1986 or jones@nyassembly.gov
* Senator Betty Little 518 561-2430 or little@nysenate.gov

Weekly Disability Reading List

Closeup picture of a monthly calendar, focused on a single week

Links to three disability-related articles shared last week on NCCI social media. You can always visit NCCI on Facebook and Twitter at the following links:

Facebook:  https://www.facebook.com/ncciplattsburgh/
Twitter:  https://twitter.com/NCCIPlatts

New content is added every day.

The College Admissions Scandal Could Have Lasting Impacts for Disabled People
Brittney McNamara, Teen Vogue - March 13, 2019

Anger over this “college testing scandal” could make life even harder for people with disabilities who need testing accommodations.

Flying Tips for Wheelchair Users, By Wheelchair Users
Barbara Twardowski and Jim Twardowski, New York Times - March 8, 2019

A good list of air travel tips for travelers who use wheelchairs. In the meantime, airlines are now required to keep records of wheelchair damages and other problems, so soon we may finally see the full scale of the problem.

On Disability and on Facebook? Uncle Sam Wants to Watch What You Post
Robert Pear, New York Times - March 10, 2019

Nobody wants people to cheat on Disability, but trying to figure that out by looking at someone’s Facebook page seems intrusive and potentially grossly misleading.

Friday, March 8, 2019

Weekly Disability Reading List

Closeup picture of a monthly calendar, focused on a single week

Links to three disability-related articles shared last week on NCCI social media. You can always visit NCCI on Facebook and Twitter at the following links:

Facebook:  https://www.facebook.com/ncciplattsburgh/
Twitter:  https://twitter.com/NCCIPlatts

New content is added every day.

Mike Oliver, pioneer of ‘revolutionary’ social model of disability, dies - reports
Aine Kelly-Costello, NewsHub - March 3, 2019

This profile also provides a good explanation of what the “Social Model” of disability is and why it’s so important to people with disabilities, the disability rights movement, and Independent Living Centers like NCCI.

My Knowledge of My Body is Often Ignored When I Seek Medical Care
Rachel Lichman, Rooted In Rights - February 28, 2019

It’s not exactly news that disabled people tend to have a harder time dealing with the medical profession. This personal essay explores some of the ways that actually plays out.

Disabled Docs – Healing the Medical Model?
Tim Gilmer, New Mobility - March 1, 2019

Part of a series on medical professionals with disabilities … not only expanding opportunities for disabled people in the field, but hopefully also helping making the profession more responsive to disabled patients.

Friday, March 1, 2019

Weekly Disability Reading List

Closeup picture of a monthly calendar, focused on a single week

Links to three disability-related articles shared last week on NCCI social media. You can always visit NCCI on Facebook and Twitter at the following links:

Facebook:  https://www.facebook.com/ncciplattsburgh/
Twitter:  https://twitter.com/NCCIPlatts

New content is added every day.

Carrie Ann Lucas Was a BAMF
Rebecca Cokley, Disability Visibility Project - February 27, 2019

This past weekend the disability community lost a tremendous advocate, who championed the rights of parents with disabilities.

Personal assistance needed
Annemarie Schuetz and Elizabeth Lepro, The River Reporter - February 20, 2019

An excellent profile of a CDAP user, how the program works, and how it is under threat.

Will Presidential Candidates Remember the Voting Power of People With Disabilities?
Robyn Powell, Rewire.News - February 20, 2019

The 2020 campaign is already starting!

Thursday, February 28, 2019

A Day in the Life

By Allison Jonergin

I awaken with a jerk. Cramps. I leap out of bed, and before I know what’s happening, I’m in the bathroom where my intestines reject yesterday’s meal-of-the-day.

Out of breath and soaked in perspiration, I hobble back to bed. Sunlight streaks through the blinds, prompting twinges of pain behind my eyes. I want to close them, but my anxiety is already awake, and my heart is pounding loudly in my chest. I toss and turn for a while, until I’ve recovered enough from my morning escapade to rise and shower. I forget to bring a towel with me, thanks to fibro fog clearing my train of thought from its tracks, and head back to the hallway closet twice before remembering to grab one. The bristles of my toothbrush scrape against my teeth like nails against a chalkboard. Already my throat is dry and hoarse – a side effect of more than one of my medications. The dry mouth rinse feels luxurious and refreshing, and I swirl it around and around in my mouth, not wanting to expectorate.

I slip off my clothes and steady myself as I step into the tub, using two shower bars for support. I get dizzy spinning around in an enclosed space, and knock a tube of exfoliator onto the floor with an echoing boom. I cringe. At first, I’m tempted to leave it, knowing there’s a good chance I’ll knock it over again. My better sense kicks in, and I realize I have an equal or better chance of tripping over it. I squat and pick it up. The warm water turns cold for a moment, and I feel as though I’m in the blast of a firefighter’s hose. My pain receptors memorize the location of each droplet to haunt me with later, long after I’ve turned off the water.

Guest Blogging with picture of a while 3 dimensional stick figure moving a giant pen
I dress in warm layers of soft clothing, ditching abrasive materials like denim. Allodynia – a pain caused by non-painful stimuli – makes it hurt when fabric rubs against my skin. Moreover, allodynia can make the surface of my head and body sensitive to touches of any kind, even a loved one’s soft embrace. A well-intentioned hug can squeeze me like a garbage truck.

I no longer risk going an entire day with cold feet. I’ll pack extra socks in my purse and slide on a second layer if I’m having trouble regulating my body temperature or the outside temperatures dip so low that the cold takes root in my bones and doesn’t leave.

With fibromyalgia, the trick is getting ahead of the pain using preventative tactics. Eating a diet rich in whole fruits and vegetables fends off inflammatory pain caused by eating foods high in wheat and dairy. Allowing ample time in my schedule to rest during the day relieves the stress of a sleepless night. I’ve crafted an exercise routine that heals and empowers my body when I practice it consistently.

Along with an extra pair of socks, in my purse you’ll find dry mouth lozenges and lip balm. Where dry mouth is, chapped lips aren’t far behind. I carry with me a bottle of water at all times to satisfy my mouth’s craving for coolness. I seek out these small sources of comfort with purpose, planning them into my day.

I hop from one sweet indulgence to the next, relishing in the relief that washes over me, cleansing my despondency until the next guilty pleasure.

Next up, a nap. 

Allison Jonergin is a SUNY Plattsburgh alumna and North Country native. She has fibromyalgia, CFS/ME and endometriosis. She also deals with irritable bowel syndrome, anxiety, depression and migraines.

More Blogs by Allison Jonergin:

Tuesday, February 26, 2019

Help ensure Independent Living Centers receive a crucial funding increase of only $5 million in this year’s budget!

Action Alert in bold white letters on dark red background

We all know how crucial Independent Living Centers are in communities across the State. They provide a wide array of supports and services that help people be independent and integrated in their communities. ILCs rely on the State for funding to provide these vital services, but the State has failed to adequately fund centers for well over a decade, leaving centers struggling to continue providing core IL services.

Unfortunately, Governor Cuomo’s proposed Executive Budget once again failed to give centers the additional funding they need to meet the needs of their communities. But it isn’t too late to get an increase in this year’s budget!

The next step is the legislature. The Senate and Assembly will release their one house budget responses in a few weeks. There was a budget sign on letters in support of an increase in funding for Independent Living Centers in the Assembly with strong support.  Now we need to make sure the members of the Senate and Assembly’s Education Committees hear from their colleagues about the importance of ensuring their one house budgets include a funding increase of $5 million for ILCs!

ACTION: Send a message to your Senator and Assembly member urging them to speak to the members of the lower Education Committees in support of an increase of only $5 million for Independent Living Centers being included in their one house budget response!

Take Action!

Job Opening: Housing Specialist

The North Country Center for Independence (NCCI) is seeking a Housing Specialist for a statewide pilot program to provide housing subsidies to individuals transitioning or diverting from institutional settings to the community. The Olmstead Housing Subsidy (OHS) program is a project of the New York Association on Independent Living funded by the NYS Department of Health.
 
Responsibilities:
 
• Identify housing opportunities for individuals who are in need of housing in order to leave a nursing home, as well as for those who have unstable housing after leaving a nursing home.
• Assist eligible Olmstead Housing Subsidy participants through all steps necessary for enrollment, including: filling out housing applications, obtaining household goods and/or support for moving expenses, arranging unit inspections, etc.  
• Work with applicants and/or his/her Transition Specialist, Service Coordinator (SC), Nursing Home Discharge Planner, Care Manager (CM), natural support, or advocate in order to ensure that a support services plan is in place for program enrollment.  
• Conduct follow-up after subsidy is initiated including but not limited to verifying occupancy of unit and continued eligibility for program.
• Work to identify landlords, public housing, and private housing in the region which may be suitable for individuals enrolled in the OHS program in the future.
• Maintain a list of available housing in the region, including degree of accessibility, location, proximity to services, and rental costs.  
• Track and report on all activities using the statewide project database.
 
Qualifications:
 
• Professional experience in housing, community organizing, Independent Living, long term care, and/or disability rights strongly preferred.
• Knowledge of state and local housing policies, practices, laws and issues impacting seniors and people with disabilities preferred.
• Bachelor’s degree.
• Excellent organizational and computer skills; energetic self-starter; ability to travel in NYC and possibly nearby regions.
• An equivalent combination of education and experience to successfully perform the essential duties of the position may be substituted.
• Personal experience with disability a plus.
 
Salary: $28,000 per year (full time position) and benefits package available
 
PLEASE E - MAIL A COVER LETTER AND RESUME TO:
Robert Poulin at robert@ncci-online.com
 
We conform to all laws, statutes, and regulations concerning equal employment opportunities and affirmative action. We strongly encourage women, minorities, individuals with disabilities, and veterans to apply to all of our job openings. We are an equal opportunity employer and all qualified applicants will receive consideration for employment without regard to race, color, religion, gender, national origin, disability status, genetic information and testing, family and medical leave, sexual orientation and gender identity or expression, protected veteran status, or any other characteristic protected by law. We prohibit retaliation against individuals who bring forth any complaint, orally or in writing, to the employer or the government, or against any individuals who assist or participate in the investigation of any complaint or otherwise oppose discrimination.

Sunday, February 24, 2019

Action Alert: Act Now To #SaveCDPA

ACTION ALERT in white bold letters on dark red background

This action alert comes from the New York Association on Independent Living:

The Governor’s proposed budget makes drastic changes to the Consumer Directed Personal Assistance (CDPA) program that will put the whole program at risk! This proposal, if enacted, would significantly reduce the number of Fiscal Intermediaries (FIs) in the State. FIs provide necessary assistance to ensure CDPA consumers are successful and maintain their independence in the community through training, ongoing support, payroll and other administrative assistance.

Even more alarmingly, the State is planning to cut the reimbursements to FIs so drastically that it would immediately put most of the FIs, including all of the Independent Living Centers who are FIs, out of business immediately. The Governor believes that all FIs do is process payroll, which demonstrates a lack of understanding of CDPA. Such radical and ill-informed changes to CDPA puts the entire program at risk and threatens existing consumers.

Last week, NYAIL and CDPAANYS had a successful Budget Advocacy Day where hundreds of Independent Living advocates, FIs, and CDPA consumers came to Albany to fight this proposal. The legislators heard our concerns. However, they need to keep hearing from us! The Senate and Assembly will be putting out their one house budget proposals in a few weeks, and it is very important that those budget proposals successfully get rid of this very harmful proposal and that puts the whole CDPA program at risk!

*Action:*Follow the "Take Action" link to send a letter https://www.votervoice.net/BroadcastLinks/qrrkqpix61j1NuDCDamt1A to your legislators urging them to #SaveCDPA in their one house budget proposals!

Take Action! https://www.votervoice.net/BroadcastLinks/qrrkqpix61j1NuDCDamt1A

For information on our CDPA program, click here to visit the NCCI website.

Friday, February 15, 2019

Three Links

Closeup picture of a monthly calendar, focused on a single week

Links to three articles shared last week on NCCI social media. You can always visit NCCI on Facebook and Twitter at the following links:

Facebook:  https://www.facebook.com/ncciplattsburgh/
Twitter:  https://twitter.com/NCCIPlatts

New content is added every day.

#ThingsDisabledPeopleKnow is Necessary Because Realistic Disability Representation is Scarce
Imani Barbarin, Rooted In Rights - February 6, 2019

Twitter hashtags are kind of a cliche, but they are still sometimes useful and even inspiring. This is a great example of how Twitter can foster real sharing between people with disabilities.

For People With Disabilities, Navigating Can Be Difficult In Wintertime
Dave Lucas, Northeast Public Radio - February 4, 2019

Another take on a familiar North Country accessibility issue.

The 2019 New York State Disability Priority Agenda
NCCI Blog - February 11, 2019

Our blog post linking to this year’s statewide advocacy agenda. It’s a good, quick way to get up to date on what’s happening in Albany and what the disability community wants.

Monday, February 11, 2019

The 2019 New York State Disability Priority Agenda

New York Association on Independent Living

Staff from the North Country Center for Independence are in Albany today to meet with legislators and advocate for better disability-related policies in New York State. As a member center in the New York Association on Independent Living, (NYAIL), NCCI will be focusing our broader advocacy 2019 on the issues outlined on the pages linked below:

NYAIL 2019 Legislative Disability Priority Agenda
Policy changes we want to see in New York State.

NYAIL 2019 Budget Disability Priority Agenda
New York State budget steps we want to see.

The following documents provide additional background on the current state policies and trends that determine our goals for 2019:

NYAIL Legislative Report Card 2019
An assessment of past promises and current New York State disability policy.

NYAIL Budget Report Card 2019
An analysis of how the current New York State budget addresses disability issues.

NYAIL’s 2019 Budget Priorities Letter to Governor Cuomo
Our message to Governor Cuomo for 2019.

Friday, February 8, 2019

Three Links

Closeup picture of a monthly calendar, focused on a single week

Links to three articles shared last week on NCCI social media. You can always visit NCCI on Facebook and Twitter at the following links:

Facebook:  https://www.facebook.com/ncciplattsburgh/
Twitter:  https://twitter.com/NCCIPlatts

New content is added every day.

Many shelters can’t handle domestic-violence survivors with disabilities
Maria Polletta, Arizona Republic - February 4, 2019

This has been a chronic accessibility problem for years. It’s interesting to note that the shelter director quoted says the problem is they didn’t know who to call. There are ILCs like NCCI in every state ready to help people who want to improve accessibility!

Episode 68: Wally the Alligator and Sensationalism
Emily Ladau & Kyle Kachadurian, The Accessible Stall Podcast - February 5, 2019

A very interesting audio discussion, not just about what “counts” as a “service animal,” but whether disability issues are well served or distorted by seemingly “outrageous” disability stories.

Lawmakers Call For End To Subminimum Wage
Michelle Diament, Disability Scoop - February 5, 2019

More details on the new Senate bill to phase out subminimum wage: the Transformation to Competitive Employment Act, or S. 260.

Friday, February 1, 2019

Three Links

Closeup picture of a monthly calendar, focused on a single week

Links to three articles shared last week on NCCI social media. You can always visit NCCI on Facebook and Twitter at the following links:

Facebook:  https://www.facebook.com/ncciplattsburgh/
Twitter:  https://twitter.com/NCCIPlatts

New content is added every day.

5 ways to protect the confidentiality of counseling clients with intellectual and developmental disabilities
Rose Reif - January 23, 2019

A really good article on confidentiality in disability services.

Experiencing an Endometriosis or Fibromyalgia Flare
Allison Jonergin, NCCI Blog - January 29, 2019

Guest blog from Allison Jonergin.

Chairman Scott, Senator Casey, and Congresswoman McMorris Rodgers Introduce Bipartisan Bill to Help Workers with Disabilities Transition to Competitive, Integrated Employment
U. S. House Education & Labor Committee - January 31, 2019

A new bill in Congress that would phase out subminimum wage.

Tuesday, January 29, 2019

Experiencing an Endometriosis or Fibromyalgia Flare

Allison Jonergin
Guest Blogger

It’s hard to talk about flares. While they’re unfolding, I’m not carving intricate memories, I’m focused on my next breath. Then suddenly they’re over, though full days have passed. It feels insincere to talk about it when it’s not actually happening.

A sufferer of chronic pain, I don’t have pain-free days. Whereas most days press my limits, during flares I occupy the losing side.

Guest blogging logo
I remember my Dad urging me, “Now’s not the time to be brave,” while waiting to see the doctor in the emergency room. The pain was not nearly as severe as it had been moments prior. It was still the worst pain I’d experienced in my life, but the throbbing wound couldn’t compare to the impact of the bullet. Except it wasn’t a bullet or a visible flesh wound, but internal bleeding caused by lesions of endometrial tissue swelling in unison with my endometrial lining, located in the uterus, growing to receive a fertilized egg. And, when no such egg arrived, it was time to break away and leave my body as my period. Except these endometrial tissues don’t belong outside of the uterus, and they were growing on organs throughout my pelvis and abdomen. Trapped, the tissues bled until fluxes in my hormone levels instructed them to stop. My options were hormone treatments or surgery. I would need several rounds of both.

The doctor didn’t tell me this that night. Like many women, my endometriosis was going undetected. I waited three years after the onset of my first symptoms to be diagnosed.

I’m fortunate to be a success story. Two years after that emergency room visit, I underwent a total hysterectomy, removing also my fallopian tubes and one ovary. While there is no cure for endometriosis, I’m no longer having surgery after surgery to remove endometriosis lesions. I still experience pelvic pain – thanks mostly to scar tissue – especially when my remaining ovary decides to ovulate.

Fibromyalgia, on the other hand, is an ache that runs deep into my muscles; it clenches my bones and joints in vice grips; it sends supercharged shockwaves down my limbs like a rogue sparking electric wire; it lights entire sheets of skin on fire from within; it furnishes my wrists and ankles with cement blocks, exhausting my physical strength.

This sort of suffering doesn’t build character; it breaks it.

In A Farewell to Arms, Ernest Hemingway said, “The world breaks everyone and afterward many are strong at the broken places.”

Broken is exactly how I feel in the midst of a flare. I don’t have the energy to speak, or even to nod or smile. I’m taking shallow breaths because my rib cage feels too heavy to lift. I can’t hold myself upward, the weight of my muscles, organs and fatty tissue slung over my skeleton like a wet towel. None of my movements feel natural, my shirt rubbing like sandpaper against my skin. I’m dragging myself, with not a single muscle cooperating in carrying the load.

I’m tapped out. This must be what dying feels like, I think. But around me, smiling faces are speaking and asking me questions. They don’t see the light leaving my eyes.

Every word my ears involuntarily hear siphons the last drops of energy from my tank.

Hemingway went on to write, “But those that will not break it kills. It kills the very good and the very gentle and the very brave impartially.”

So in my darkest moments, I remember that I have braved long nights before, and I’ve lived to see the sun rise. To break means I am still alive.

More Blogs by Allison Jonergin:

Friday, January 25, 2019

In Memoriam: Cindy Bryan

Dear Friends,

It is with great sorrow that I must inform you of the passing of a great woman, a fellow colleague and friend who has meant so much to the North Country Center for Independence and to this community. Cindy Bryan was a tireless worker who was absolutely devoted to NCCI and especially to the consumers that she served. Cindy was a giver and she carried the weight of the economic injustice that she saw daily on her shoulders. Cindy was NCCI’s Medicaid Facilitated Enroller for the aged, blind and disabled but she did so much more. She was an incredibly skilled finance person and acted as a mentor for both the Executive Director and Financial Director of the agency. There wasn’t anything she wouldn’t do to help her colleagues. She made people’s lives better. Although we are greatly diminished by her loss, I know that she is encouraging us from the next life to keep on fighting and working for the people that we serve. Let us always remember her as a person who was devoted to making the world a better place. Cindy, thank you for your service, thank you for touching our lives, we will miss you, good bye for now.

To Cindy’s family, we send our deepest sympathies. Thank you so much for sharing her with us. She meant the world to this organization and to the people she helped.

Robert Poulin
Executive Director

Friday, January 18, 2019

Three Links

Closeup picture of a monthly calendar, focused on a single week

Links to three articles shared this past week on NCCI's social media. You can always visit NCCI on Facebook and Twitter at the following links:


New content is added every day.

Courtney Cole, Rooted In Rights - January 11, 2019

A critical look at the film itself, the weird social phenomenon, and how both related to peoples’ perception of blindness.
Alison Green, Ask A Manager - January 14, 2019

It’s good to see an advice program that doesn’t specialize in disability getting a disability issue right!

Ace Ratcliff, Eater - January 16, 2019

A fresh take on a familiar topic.

Tuesday, January 15, 2019

Important Notice About SNAP (Food Stamps)

SNAP (Food Stamps) recipients in New York will see an unexpected increased balance on January 20. Please note … this will be an advance payment of your usual February allocation, not an actual increase in benefits.

Picture of a green dollar sign next to puzzle pieces
Early payment of February’s allocation is happening because of the partial federal government shutdown. SNAP program administrators have managed to secure February’s funding, but it must be distributed early. The important thing for SNAP recipients to remember is that this is not an increase. You are not getting more than you usually get. You are just being paid for February early.

That means that you will need to take extra care to budget your SNAP benefits carefully. Don’t spend it all now, or you won’t have enough left over in February. Your best response to the early payment should be to do nothing different. Only spend what you were normally planning on spending, in January first, then February.

The SNAP program, previously known as Food Stamps, helps 1 in 7 American families afford nutritious food. In New York State it’s 1 in 8 families. The program is especially vital to people with disabilities. in 2015, 1 in 4 SNAP recipients had some kind of disability. In New York, almost half of the families receiving SNAP include someone with a disability.

If you have any questions about this, call your office of Social Services, or NCCI at 518-563-9058.

Friday, January 11, 2019

Action Alert: Act Now to Ensure All Voting Reforms Are Accessible To People With Disabilities!

Action Alert in large white letters on a dark red background

This Action Alert was posted today by the New York Association on Independent Living (NYAIL) ...

The legislature is planning to take up a package of voting reforms on Monday. Among the package of bills is A.780/S.1102, which would implement early voting in New York State. NYAIL strongly supports making it easier to vote by enacting voting reforms like early voting and same day and automatic voter registration, but it is critical that accessibility is prioritized in all of these proposed policies!

As written, the current bill does not ensure full accessibility to voters with disabilities during early voting. It does not require that a ballot marking device be available during early voting. In other states that already have early voting, ballot marking devices have not always been available. It is critical that the state ensure they are available in New York! Other states have not always included BMDs during early voting. This is unacceptable!

Call the Election Law Chairs and the heads of the State Senate and Assembly today and urge them to ensure full accessibility during early voting when they take up A.780/S.1102 on Monday!

Action: CALL TODAY!

  • Senate Majority Leader Andrea Stewart Cousins - 518-455-2585
  • Speaker of the Assembly Carl Heastie - 518-455-3791
  • Assembly Election Law Chair, Charles Lavine - 518-455-5456
  • Senate Election Law Chair, Zellnor Myrie - 518-455-2431

Say:

"I strongly support making it easier for everyone to vote by implementing early voting, automatic voter registration and same day voter registration, as long as accessibility for voters with disabilities is prioritized in all voting reforms. A.780/S.1102 does not do this. The bill does not mandate a ballot marking device, which allows people to vote privately and independently, be available during early voting. Whenever and wherever elections are held and in whatever format, the State and localities must make all voting accessible to all voters with disabilities, and having a ballot marking device at all polling locations during early voting is an essential part of full accessibility."

Three Links

Closeup picture of a monthly calendar, focused on a single week

Links to three articles shared over the last week on NCCI social media. You can always visit NCCI on Facebook and Twitter at the following links:


New content is added every day.

Katrina Kelly, Center for Disability Rights - January 2, 2019

A disabled woman’s story of adopting a child.
Mary Alex Bernard, The Philadelphia Inquirer - August 2, 2018

Adaptation to disability goes in both directions.

Living Big In A Tiny House - January 4, 2019

More of this in home construction please … tiny or not!

Friday, January 4, 2019

Three Links

Closeup picture of a monthly calendar, focused on a single week

Links to three articles shared recently on NCCI social media. You can always visit NCCI on Facebook and Twitter at the following links:


New content is added every day.

Henry J. Aaron, Brooking’s Institution - December 12, 2018

A good overview and update on the Social Security Disability “crisis”. The only thing missing is the possibility that people who actually need and use SSDI might have ideas to improve it.
Allison Jonergin, NCCI Blog - December 28, 2018

Another wonderful guest blog from Allison Jonegrin.

Jessica Gimeno, Fashionably Ill - January 4, 2019


Strong advice on how to treat people with disabilities, and why seemingly innocuous questions can be so upsetting.